These resources are available to new users getting started using the registry:
Data Entry Forms – These forms are designed to be filled out by clinical staff at the time of a patient case discussion or clinical intervention and then later used for data entry into BAJIR by your local trust’s admin staff. The patient’s initial proms should be collected by the treating trust as soon as is feasible after the patient initially presents. All subsequent follow up PROMs are organised and collected by postal forms by the registry.
New User Registration
In order to start using the Bone and Joint Infection Registry (BAJIR) you will need to ask your own trust’s information governance team to sign the information sharing agreement below. The only parts to fill in are the name of your trust and the governance team signature on page 13.
Once patients are entered onto the registry they are contacted by registry staff at 6-months and 1-year to obtain consent to continue to hold their data on the registry. You are also required to complete your own trust’s Caldicott approval form which will also require approval by your local Information Governance team, we enclose an example completed form in the attached documentation.
A completed version of your trust’s Caldicott form is necessary to cover arrangements for patients who do not consent for the data to be included in the national registry. This allows your trust to continue to include their data in the local version of the registry to allow the local coordination and record of ongoing patient care, without their record being part of the main registry.
All relevant Information Governance details can now be found in a single file attached below.
Once you have a signed information sharing agreement and Caldicott form then please e-mail them to us at email@example.com and we will then arrange for you to have accounts for your staff to access the live registry.
For help regarding new user registration please contact firstname.lastname@example.org